On Tuesday we will learn a great deal of things. If no stricture or narrowing and the loop of intestine is dilated/nonfunctional, then Dr. S feels that surgery is the next option. Unfortunately, I agree. During the procedure, we are going to localize where this loop of intestine is in relation to the skin. This will assess the feasibility of surgery if needed.
Ron seems to have more than enough intestine at this point. He has lost weight but electrolytes and albumin are normal and no diarrhea leading me to think that he has enough small intestine currently. On x-rays, the loop of intestine does not seem very long so if it needs to be removed, I don’t think that short bowel syndrome will result. The caveat is if there are no complications… If surgery is needed, Ron will need some TPN but I don’t expect it to be a long term issue.
Regarding timing of surgery, I don’t know. There is no emergency currently and we would want the surgery to occur in the best of settings with lots of planning.
Keep praying!
Christie
Friday, January 30, 2009
Thursday, January 29, 2009
Shepherd
It's so good to be home! I unloaded Ron and all our stuff around 11:30 then headed in to work. It was good to be back to something that feels so normal, with so many areas of my life totally out of my hands, it's a tremendous respite to be somewhere doing something where I feel I have some sort of control.
Beware, the raw transparency is about to unleash! Thanks, in advance, for listening. Let the therapy session begin:
Unfortunately, the erythromycin has not made a difference and Ron was "yakking" (as Dr. A calls it) after eating two meals of solid food. So, he has been put back on a strict liquid diet. After consulting with Dr. S, decision was made that another procedure, enteroscopy (type of endoscopy using a longer scope to reach the small bowel) needs to take place.
On Tuesday, February 3, Dr. A will do the enteroscopy and try to get to where the loop of bowel is dilated and see exactly what is going on. This procedure is done on an outpatient basis but Dr. A said to pack a bag just in case; if anything is even slightly difficult, he will want to admit Ron for observation. Dr. A is specifically looking to see if any kind of a stricture or obstruction is causing things to back up, thus causing that section of bowel to enlarge. If there is, he hopes to use a balloon to stretch it slightly (this will have to be done multiple times over several weeks); obviously this has some risks involved which are heightened due to all the complications from previous surgeries. If they don't find an obstruction/stricture, this will prove it is a motility problem; which means that section of the small bowel is not functioning.
The quietness of our truck as we were driving home caused me to reflect on all we've learned and decisions we've made, which led to questions. I try not to go to the place of 'what if"; it tends to be quite overwhelming. But, I also need to be realistic, as well as prepared. I know we briefly discussed some of this but my overloaded brain has to hear things repeatedly in order to process and absorb. So, these are my questions posed to Dr. A, (I'll share his answers when I hear back)
If you go in Tuesday and find there is no stricture/obstruction therefore this is a motility issue, what then? Will the Domperidone (non FDA-approved drug) still be the next option? If we understood Dr. S correctly, he is of the opinion that if the motility has not kicked in by now, it's not going to and that section of bowel most likely needs to come out. Obviously, he doesn't like that option and is hoping for a stricture/obstruction...whatever! Just something that can be dealt with nonsurgically.
If surgery does indeed need to take place, how quickly would this need to happen? Where would this put Ron as far as amount of remaining small bowel? Will he have enough small bowel to lead a normal life (whatever that means!) Will he need to be placed on TPN? What are the implications?
I realize I am extremely tired and may be jumping the gun; we don't know what the outcome will be on Tuesday but the land of "what if" is looming ever larger before me. Several times throughout the afternoon/evening the possibility of what may come has hit me hard. I've cried and questioned and screamed ENOUGH GOD! I don't think I can take any more! I keep thinking how great it would be to get on a plane and fly somewhere, anywhere away from here and all that's going on. But reality is, it will still be here: the procedures that need to be done, the decisions that need to be made, the weariness...and the sorrow over what we think could have/should have been. But in the midst of it all, as much as I wish things were different I choose to say "Father, it's not what I want but if this is really Your will, help me get through. Help me cling to You and never lose hope. No matter what happens, I can rest in knowing You never change. You are the same yesterday, today and tomorrow. Your love for me knows no bounds and I can trust You in ALL things. You promise You will NEVER leave or forsake me. That doesn't mean I won't have tough times; but I know You will carry me when I stumble beneath the weight."
Inhale. Exhale. Aaahhh, I already feel better. Thank you, Father! And thank you faithful ones for joining me in this journey; for your willingness to shoulder our burdens. As I share with you our world, I can already feel this load being lifted.
Please join us in praying for results from Tuesday's procedure to be better than we could ever imagine. For there to be a definitive answer as to what the next step should be. I would love for it to involve a quick remedy with no surgery required; but am trying to be open to whatever God's will may be.
Ah, my music and how it ministers to me! If you've never heard the song, Shepherd by
Todd Agnew search it out and read the words as you listen. It mirrors my spirit on many days.
Below are excerpts from some of the verses that speak to me:
Shepherd, Your sheep are weary
Cold and tired, battered and bruised and torn
We need to hear Your voice
Whatever You might say
We just need to hear Your voice
Show us the way
Rest in knowing though we may be battered and bruised and torn; all is right in our world --for God is still on His throne.
Christie
Beware, the raw transparency is about to unleash! Thanks, in advance, for listening. Let the therapy session begin:
Unfortunately, the erythromycin has not made a difference and Ron was "yakking" (as Dr. A calls it) after eating two meals of solid food. So, he has been put back on a strict liquid diet. After consulting with Dr. S, decision was made that another procedure, enteroscopy (type of endoscopy using a longer scope to reach the small bowel) needs to take place.
On Tuesday, February 3, Dr. A will do the enteroscopy and try to get to where the loop of bowel is dilated and see exactly what is going on. This procedure is done on an outpatient basis but Dr. A said to pack a bag just in case; if anything is even slightly difficult, he will want to admit Ron for observation. Dr. A is specifically looking to see if any kind of a stricture or obstruction is causing things to back up, thus causing that section of bowel to enlarge. If there is, he hopes to use a balloon to stretch it slightly (this will have to be done multiple times over several weeks); obviously this has some risks involved which are heightened due to all the complications from previous surgeries. If they don't find an obstruction/stricture, this will prove it is a motility problem; which means that section of the small bowel is not functioning.
The quietness of our truck as we were driving home caused me to reflect on all we've learned and decisions we've made, which led to questions. I try not to go to the place of 'what if"; it tends to be quite overwhelming. But, I also need to be realistic, as well as prepared. I know we briefly discussed some of this but my overloaded brain has to hear things repeatedly in order to process and absorb. So, these are my questions posed to Dr. A, (I'll share his answers when I hear back)
If you go in Tuesday and find there is no stricture/obstruction therefore this is a motility issue, what then? Will the Domperidone (non FDA-approved drug) still be the next option? If we understood Dr. S correctly, he is of the opinion that if the motility has not kicked in by now, it's not going to and that section of bowel most likely needs to come out. Obviously, he doesn't like that option and is hoping for a stricture/obstruction...whatever! Just something that can be dealt with nonsurgically.
If surgery does indeed need to take place, how quickly would this need to happen? Where would this put Ron as far as amount of remaining small bowel? Will he have enough small bowel to lead a normal life (whatever that means!) Will he need to be placed on TPN? What are the implications?
I realize I am extremely tired and may be jumping the gun; we don't know what the outcome will be on Tuesday but the land of "what if" is looming ever larger before me. Several times throughout the afternoon/evening the possibility of what may come has hit me hard. I've cried and questioned and screamed ENOUGH GOD! I don't think I can take any more! I keep thinking how great it would be to get on a plane and fly somewhere, anywhere away from here and all that's going on. But reality is, it will still be here: the procedures that need to be done, the decisions that need to be made, the weariness...and the sorrow over what we think could have/should have been. But in the midst of it all, as much as I wish things were different I choose to say "Father, it's not what I want but if this is really Your will, help me get through. Help me cling to You and never lose hope. No matter what happens, I can rest in knowing You never change. You are the same yesterday, today and tomorrow. Your love for me knows no bounds and I can trust You in ALL things. You promise You will NEVER leave or forsake me. That doesn't mean I won't have tough times; but I know You will carry me when I stumble beneath the weight."
Inhale. Exhale. Aaahhh, I already feel better. Thank you, Father! And thank you faithful ones for joining me in this journey; for your willingness to shoulder our burdens. As I share with you our world, I can already feel this load being lifted.
Please join us in praying for results from Tuesday's procedure to be better than we could ever imagine. For there to be a definitive answer as to what the next step should be. I would love for it to involve a quick remedy with no surgery required; but am trying to be open to whatever God's will may be.
Ah, my music and how it ministers to me! If you've never heard the song, Shepherd by
Todd Agnew search it out and read the words as you listen. It mirrors my spirit on many days.
Below are excerpts from some of the verses that speak to me:
Shepherd, Your sheep are weary
Cold and tired, battered and bruised and torn
We need to hear Your voice
Whatever You might say
We just need to hear Your voice
Show us the way
Rest in knowing though we may be battered and bruised and torn; all is right in our world --for God is still on His throne.
Christie
Tuesday, January 27, 2009
Results are in
Doctors did a switcharoo on us today! Ron was taken down for an EGD (upper endoscopy) at 9 AM, then was taken straight to x-ray for upper GI with small bowel follow through. He was thankful they knocked him out for the EGD and woke up asking me if he’d said anything that could get him in trouble while “under the influence”.
EGD showed severe esophagitis (eroded/ulcerated esophagus) extending pretty high up; caused by all the reflux and vomiting. Esophagitis is reversible; damage done will get better - once things are under control.
Dr. A also saw swollen, fluid-filled (edematous) tissue in his esophagus, stomach and small intestine. There was fluid sitting in the stomach—a sure sign that things aren’t making their way out of stomach very well since he’d had nothing to eat or drink for over 12 hours (no wonder he’s had such reflux). It’s a constant irritation to have things just sitting in there (also explains edema in stomach).
EGD also revealed small intestine showed pools of liquid all around, thus indicating it is not functioning properly (not “awake”; therefore, not pushing anything through).
Good news is he didn’t see any signs of a stomach ulcer or cancer anywhere. He did take a biopsy of esophagus, stomach and intestine and will analyze to see if there are any abnormalities.
I have quite the lovely pictures from the procedure to show anyone who's interested!
Ron was started on Erythromycin; an antibiotic that can oftentimes be used to cause intestines to “wake up”. If this doesn’t work (should see results fairly soon) he will switch to Domperidone (medication to wake-up intestines; increases movement/contractions of the stomach and bowel to promote movement through the digestive system). This drug is not FDA approved (small association with cardiac arrest and arrhythmia, therefore they did an EKG this afternoon which came back perfectly normal).
He will remain here at Presby for a couple of days. If Erythromycin doesn’t show signs of helping; he will go home to start on the Domperidone, since it is not FDA approved, the hospital cannot give it to him; so this will be my job…how scary is that? Some days I feel like I’m living in a medical drama. I keep waiting for House to walk in; or maybe Dr. Shepherd; now that wouldn’t be so bad!
Now, on to the upper GI:
The loop of small intestine, that has shown to be enlarged on previous studies, is slightly larger than it was on last study. Dr. A will consult with Dr. S to see if he thinks this could be an indicator of any kind of stricture or blockage and if it needs to be addressed in any way. Otherwise, everything else looked normal.
He will remain on full liquids until we see how things “go”.
Huge praise—I was scheduled for a (3 years) long overdue mammogram Tuesday which I had already rescheduled once before (not a great idea since my mom had breast cancer). When we saw there was a possibility of inclement weather I was debating rescheduling again but just couldn’t decide what to do. Around 4PM HealthSouth called asking if they could reschedule because their machine broke! How’s that for an answer? I immediately went up to see if I could get a room, but they were booked. Around 8PM, I got a call from Hotel Presby informing me they’d had a cancellation…and it was my old room, at the long-term rate, of course! God is so good! Each time Ron has been admitted, my old room has become available. What a testimony to His grace. There’s enough anxiety during these stressful circumstances then add to that trying to sleep in unfamiliar surroundings. And yet, He always provides; at the end of the day, what a comfort to go to bed in my very familiar home away from home for half of last year!
Whew! I think that’s it!
God is good, all the time!
PS: Happy Birthday, Marcie! I love you my sweet sister!
EGD showed severe esophagitis (eroded/ulcerated esophagus) extending pretty high up; caused by all the reflux and vomiting. Esophagitis is reversible; damage done will get better - once things are under control.
Dr. A also saw swollen, fluid-filled (edematous) tissue in his esophagus, stomach and small intestine. There was fluid sitting in the stomach—a sure sign that things aren’t making their way out of stomach very well since he’d had nothing to eat or drink for over 12 hours (no wonder he’s had such reflux). It’s a constant irritation to have things just sitting in there (also explains edema in stomach).
EGD also revealed small intestine showed pools of liquid all around, thus indicating it is not functioning properly (not “awake”; therefore, not pushing anything through).
Good news is he didn’t see any signs of a stomach ulcer or cancer anywhere. He did take a biopsy of esophagus, stomach and intestine and will analyze to see if there are any abnormalities.
I have quite the lovely pictures from the procedure to show anyone who's interested!
Ron was started on Erythromycin; an antibiotic that can oftentimes be used to cause intestines to “wake up”. If this doesn’t work (should see results fairly soon) he will switch to Domperidone (medication to wake-up intestines; increases movement/contractions of the stomach and bowel to promote movement through the digestive system). This drug is not FDA approved (small association with cardiac arrest and arrhythmia, therefore they did an EKG this afternoon which came back perfectly normal).
He will remain here at Presby for a couple of days. If Erythromycin doesn’t show signs of helping; he will go home to start on the Domperidone, since it is not FDA approved, the hospital cannot give it to him; so this will be my job…how scary is that? Some days I feel like I’m living in a medical drama. I keep waiting for House to walk in; or maybe Dr. Shepherd; now that wouldn’t be so bad!
Now, on to the upper GI:
The loop of small intestine, that has shown to be enlarged on previous studies, is slightly larger than it was on last study. Dr. A will consult with Dr. S to see if he thinks this could be an indicator of any kind of stricture or blockage and if it needs to be addressed in any way. Otherwise, everything else looked normal.
He will remain on full liquids until we see how things “go”.
Huge praise—I was scheduled for a (3 years) long overdue mammogram Tuesday which I had already rescheduled once before (not a great idea since my mom had breast cancer). When we saw there was a possibility of inclement weather I was debating rescheduling again but just couldn’t decide what to do. Around 4PM HealthSouth called asking if they could reschedule because their machine broke! How’s that for an answer? I immediately went up to see if I could get a room, but they were booked. Around 8PM, I got a call from Hotel Presby informing me they’d had a cancellation…and it was my old room, at the long-term rate, of course! God is so good! Each time Ron has been admitted, my old room has become available. What a testimony to His grace. There’s enough anxiety during these stressful circumstances then add to that trying to sleep in unfamiliar surroundings. And yet, He always provides; at the end of the day, what a comfort to go to bed in my very familiar home away from home for half of last year!
Whew! I think that’s it!
God is good, all the time!
PS: Happy Birthday, Marcie! I love you my sweet sister!
Monday, January 26, 2009
Back in the saddle again....
At Ron's appointment this afternoon, decision was made to admit him to Presby. We knew this could be a possibility so were prepared with packed bags! Nothing major has changed, but we need to find out what is causing his digestive issues. It's obviously not a good thing to be throwing up as much as he is nor to be losing so much weight! Dr. A also believes he may be a little dehydrated.
He will have an upper GI with small bowel series, as well as x-rays, blood workup and IV fluids administered. He may also have CT after the upper GI and, dependent on those results, possibly endoscopy. These will be done over several days.
Not sure what my plans are as yet. Originally, I was going to go home tonight but with the chance of the weather turning bad, I might hunker down here. (I did pack a bag for myself in case I felt I needed to stay).
Will keep you posted!
He will have an upper GI with small bowel series, as well as x-rays, blood workup and IV fluids administered. He may also have CT after the upper GI and, dependent on those results, possibly endoscopy. These will be done over several days.
Not sure what my plans are as yet. Originally, I was going to go home tonight but with the chance of the weather turning bad, I might hunker down here. (I did pack a bag for myself in case I felt I needed to stay).
Will keep you posted!
Sunday, January 25, 2009
Happy Birthday, Stacee!
Today we celebrate our second daughter, Stacee! Yeah!!!
Stacee came into our lives in the midst of a whirlwind of trauma and "dying spells" and she chose to join our family in spite of all of this!
Stacee has gone above and beyond...she sacrificially moved away from her beloved home state of Florida to join the ranks of this crazy family of Texans (where everything is bigger and better!) She has fit in so well with our family--both immediate and extended. She has lent her helping hand in numerous ways in the short time she's been with us...all the while planning a wedding (often times from the hospital!), beginning a new job, and finding her way in the big city.
Thank you Father for bringing Stacee into our family. She is a blessing to each of us and a true complement to Ryan!
Happy Birthday, Lovie! We love you!
Saturday, January 24, 2009
Walk by Faith
Bummer....had to give back the Hummer! And I never got a chance to go off-roadin' in it! We picked up the truck today and it looks great!
Ron began eating solids again on Monday and has continued with the the Milk of Magnesia 3-4 times a day (along with his other regular meds). Tuesday went pretty well, other than a puking episode that night (Hmmm, could it have been the cheeseburger, fries and Dr. Pepper he insisted on for dinner? Not the wisest choice, I'm sure!) Still has diarrhea several times a day thanks to the Milk of Magnesia (which is a good thing).
The rest of the week has followed the same cycle; feels relatively ok in the mornings but a couple of hours after lunch he starts having terrible indigestion, feeling very bloated and it finally culminates with a puking episode. Things settle down after that and he's able to eat dinner ok (although several nights he's had an added puking episode).
For whatever reason, eating solid foods just doesn't seem to be his thing! He's not been eating anything crazy; typical day is a protein drink at 7:30; muffin & milk or cereal at 10:30, soup & fruit around 1:30; puking around 5 and then a pretty bland dinner. He also sips on a protein drink throughout the day in order to get a continuous trickle of nourishment. Thanks to some much-needed advice from our friend Louise, we've found a few very high protein drinks he actually enjoys. Quite a weight loss plan....he is now down to a very svelte 155 lbs. Poor guy, his clothes just hang on him.
Today, he's generally not been feeling well; exceptionally fatigued and for some reason the tremoring is back; and of course the added benefit of puking this afternoon.
We will see Dr. A next week with plans to regroup and come up with a new plan of action. Please pray there will be some revelation as to why he is having such a hard time with solid food. They have gone over and over his scans, and can't find anything that would cause this problem.
Please don't think our life is all gloom and doom ~ just like each of you, some days are better than others! We've learned to take things as they come, look for the good in each day and laugh as often as possible! We are incredibly blessed, in more ways than we can count.
One of our greatest blessings would be our doctors. Not just the one's who take care of Ron, either. It was time to refill all my maintenance meds through Medco; I knew it had been a while since I'd been in and wasn't too surprised when I got a message that Dr. Lawson wanted to see me before he would refill. When I went in, Dr. L said he had me come in so he could see if I was taking care of ME throughout all of this. Can you belief that? Then, when I was leaving, he handed me $25 and said "I'm paying for your co-pay today." I actually had a doctor pay me to come see him! haha! Dr. L has not only been our primary care physician for over 15 years, but is a faithful man of God. He has prayed for us, supported and cared for us through Aaron's accident (he actually came to see us in the Trauma ICU, not only to check on Aaron, but us!); always an incredible support to me throughout my illness, visited Ron in ICU and financially blessed us as well!
And of course, Dr. Arslanlar is wonderful! He's constantly in contact with us through phone, e-mail, and text messaging. Even on his weekends off; he makes sure I know that he's available if we need him; all I have to do is call his cell phone. How great is that?
Speaking of great doctors, did anyone happen to see Dr. Shires (Ron's surgeon) on the news a few weeks ago? Check out this link: (click on the video on the right side of page)
http://cbs11tv.com/health/pancreatic.cancer.Whipple.2.904617.html
This is not the procedure he did on Ron.
Jesus said that in this world we would have troubles but to be of good cheer because He has overcome the world. And knowing He has provided so many to care for and minister to us (doctors, nurses, and all of you!), makes this time easier to bear. Our job, is to walk by faith.
Thanks for your continued prayers! We love and appreciate you more than we can express!
Christie
Below, is another song that has really spoken to me over these last months.
Walk by Faith
Jeremy Camp
(link to listen follows, if you'd like!)
Would I believe you when you would say
Your hand will guide my every way
Will I receive the words You say
Every moment of every day
Well I will walk by faith
Even when I cannot see
Well because this broken road
Prepares Your will for me
Help me to win my endless fears
You've been so faithful for all my years
With one breath You make me new
Your grace covers all I do
Well I will walk by faith
Even when I cannot see
Well because this broken road
Prepares Your will for me
Well I'm broken- but I still see Your face
Well You've spoken- pouring Your words of grace
Well I will walk by faith
Even when I cannot see
Well because this broken road
Prepares Your will for me
http://www.tunesdaily.com/296804/Jeremy_Camp-Walk_By_Faith.mp3
Ron began eating solids again on Monday and has continued with the the Milk of Magnesia 3-4 times a day (along with his other regular meds). Tuesday went pretty well, other than a puking episode that night (Hmmm, could it have been the cheeseburger, fries and Dr. Pepper he insisted on for dinner? Not the wisest choice, I'm sure!) Still has diarrhea several times a day thanks to the Milk of Magnesia (which is a good thing).
The rest of the week has followed the same cycle; feels relatively ok in the mornings but a couple of hours after lunch he starts having terrible indigestion, feeling very bloated and it finally culminates with a puking episode. Things settle down after that and he's able to eat dinner ok (although several nights he's had an added puking episode).
For whatever reason, eating solid foods just doesn't seem to be his thing! He's not been eating anything crazy; typical day is a protein drink at 7:30; muffin & milk or cereal at 10:30, soup & fruit around 1:30; puking around 5 and then a pretty bland dinner. He also sips on a protein drink throughout the day in order to get a continuous trickle of nourishment. Thanks to some much-needed advice from our friend Louise, we've found a few very high protein drinks he actually enjoys. Quite a weight loss plan....he is now down to a very svelte 155 lbs. Poor guy, his clothes just hang on him.
Today, he's generally not been feeling well; exceptionally fatigued and for some reason the tremoring is back; and of course the added benefit of puking this afternoon.
We will see Dr. A next week with plans to regroup and come up with a new plan of action. Please pray there will be some revelation as to why he is having such a hard time with solid food. They have gone over and over his scans, and can't find anything that would cause this problem.
Please don't think our life is all gloom and doom ~ just like each of you, some days are better than others! We've learned to take things as they come, look for the good in each day and laugh as often as possible! We are incredibly blessed, in more ways than we can count.
One of our greatest blessings would be our doctors. Not just the one's who take care of Ron, either. It was time to refill all my maintenance meds through Medco; I knew it had been a while since I'd been in and wasn't too surprised when I got a message that Dr. Lawson wanted to see me before he would refill. When I went in, Dr. L said he had me come in so he could see if I was taking care of ME throughout all of this. Can you belief that? Then, when I was leaving, he handed me $25 and said "I'm paying for your co-pay today." I actually had a doctor pay me to come see him! haha! Dr. L has not only been our primary care physician for over 15 years, but is a faithful man of God. He has prayed for us, supported and cared for us through Aaron's accident (he actually came to see us in the Trauma ICU, not only to check on Aaron, but us!); always an incredible support to me throughout my illness, visited Ron in ICU and financially blessed us as well!
And of course, Dr. Arslanlar is wonderful! He's constantly in contact with us through phone, e-mail, and text messaging. Even on his weekends off; he makes sure I know that he's available if we need him; all I have to do is call his cell phone. How great is that?
Speaking of great doctors, did anyone happen to see Dr. Shires (Ron's surgeon) on the news a few weeks ago? Check out this link: (click on the video on the right side of page)
http://cbs11tv.com/health/pancreatic.cancer.Whipple.2.904617.html
This is not the procedure he did on Ron.
Jesus said that in this world we would have troubles but to be of good cheer because He has overcome the world. And knowing He has provided so many to care for and minister to us (doctors, nurses, and all of you!), makes this time easier to bear. Our job, is to walk by faith.
Thanks for your continued prayers! We love and appreciate you more than we can express!
Christie
Below, is another song that has really spoken to me over these last months.
Walk by Faith
Jeremy Camp
(link to listen follows, if you'd like!)
Would I believe you when you would say
Your hand will guide my every way
Will I receive the words You say
Every moment of every day
Well I will walk by faith
Even when I cannot see
Well because this broken road
Prepares Your will for me
Help me to win my endless fears
You've been so faithful for all my years
With one breath You make me new
Your grace covers all I do
Well I will walk by faith
Even when I cannot see
Well because this broken road
Prepares Your will for me
Well I'm broken- but I still see Your face
Well You've spoken- pouring Your words of grace
Well I will walk by faith
Even when I cannot see
Well because this broken road
Prepares Your will for me
http://www.tunesdaily.com/296804/Jeremy_Camp-Walk_By_Faith.mp3
Monday, January 19, 2009
Dodged the bullet for now!
Ron did not have to be admitted to Presby today.
He's been in better spirits since our consultation with Dr. A on Wednesday, I think just having a plan in place has been helpful. Indigestion/bloating/nausea is much better; some improvement with reflux but still coughing throughout the night from it and he woke very early Saturday morning puking. He's so sick of soups, pudding & protein drinks since that's all he's had since Wed. Unfortunately, he has lost 2 pounds over the weekend, and is feeling weaker since only being on liquids.
He finished the antibiotic on Sunday and has been taking Milk of Magnesia 3-4 times a day (depending on whether or not I'm here to remind him to take it---he's very spoiled, and I think I'm an enabler!) Things are definitely "flowing" which is very good! I never thought I'd pray someone would have diarrhea!
He wants to try eating again but is not optimistic that things will be any different than before. He also says he doesn't want to be hospitalized unless there is something specific that needs to be done that cannot be addressed at home. So, he will continue on this same regimen of Milk of Magnesia and hopefully keep the same amount of flow "going". We are both in agreement Dr. Arslanlar has the right to veto the decision if he feels it is in Ron's best interest.
And, he was very happy to begin eating solid food again today. Please pray things will go well; with no increase in reflux, indigestion or puking. And, literally, things will continue to "go"!
On another note, Friday afternoon I dropped off our truck at Progressive and picked up our replacement vehicle. I was concerned they would put me in some little bitty car and was not looking forward to it. When we arrived they assured us they always put you in a comparable vehicle. Couldn't believe it when they brought ours out...be on the lookout for this hot mama cruisin' a Hummer H3! ! So fun!
Thanks for your prayers!
Christie
He's been in better spirits since our consultation with Dr. A on Wednesday, I think just having a plan in place has been helpful. Indigestion/bloating/nausea is much better; some improvement with reflux but still coughing throughout the night from it and he woke very early Saturday morning puking. He's so sick of soups, pudding & protein drinks since that's all he's had since Wed. Unfortunately, he has lost 2 pounds over the weekend, and is feeling weaker since only being on liquids.
He finished the antibiotic on Sunday and has been taking Milk of Magnesia 3-4 times a day (depending on whether or not I'm here to remind him to take it---he's very spoiled, and I think I'm an enabler!) Things are definitely "flowing" which is very good! I never thought I'd pray someone would have diarrhea!
He wants to try eating again but is not optimistic that things will be any different than before. He also says he doesn't want to be hospitalized unless there is something specific that needs to be done that cannot be addressed at home. So, he will continue on this same regimen of Milk of Magnesia and hopefully keep the same amount of flow "going". We are both in agreement Dr. Arslanlar has the right to veto the decision if he feels it is in Ron's best interest.
And, he was very happy to begin eating solid food again today. Please pray things will go well; with no increase in reflux, indigestion or puking. And, literally, things will continue to "go"!
On another note, Friday afternoon I dropped off our truck at Progressive and picked up our replacement vehicle. I was concerned they would put me in some little bitty car and was not looking forward to it. When we arrived they assured us they always put you in a comparable vehicle. Couldn't believe it when they brought ours out...be on the lookout for this hot mama cruisin' a Hummer H3! ! So fun!
Thanks for your prayers!
Christie
Saturday, January 17, 2009
How can I keep from singing Your praise?
The last few days, as I've reflected on our sweet Hudson's words of encouragement,
"All day long I'll praise and honor You, oh God, for all that You have done for me"
Psalm 71:8
I've been reminded that no matter how long, hard or frustrating my trial may be, my focus should remain on God...His love, kindness, grace, sovereignty and suffiency. Too often, I get bogged down by circumstances and lose my focus. And then, I'm reminded; if He did nothing more than forgive my sins and give me eternal life with Him...which is so much more than I deserve....that should be enough! Yet, He has done abundantly more!!!
You all know how much music ministers to me and the last few days this song has been on my heart and in my head:
You can hear/ watch it at the following link:
http://www.youtube.com/watch?v=-GPpx9oINsI
(to see in a full screen after you click on link, hit the rectangular shape between the speaker and the up arrow under the picture)
How Can I Keep From Singing
Chris Tomlin
There is an endless song
Echoes in my soul
I hear the music ring
And though the storms may come
I am holding on
To the Rock I cling
How can I keep from singing Your praise
How can I ever say enough
How amazing is Your love
How can I keep from shouting Your name
I know I am loved by the King
And it makes my heart want to sing
I will lift my eyes
In the darkest night
For I know my Savior lives
And I will walk with You
Knowing You'll see me through
And sing the songs You give
How can I keep from singing Your praise
How can I ever say enough
How amazing is Your love
How can I keep from shouting Your name
I know I am loved by the King
And it makes my heart want to sing
I can sing in the troubled times
Sing when I win
I can sing when I lose my step
And fall down again
I can sing 'cause You pick me up
Sing 'cause You're there
I can sing 'cause You hear me, Lord
When I call to You in prayer
I can sing with my last breath
Sing for I know
That I'll sing with the angels
And the saints around the throne
How can I keep from singing Your praise
How can I ever say enough
How amazing is Your love
How can I keep from shouting Your name
I know I am loved by the King
And it makes my heart ....
I am loved by the King
And it makes my heart ....
I am loved by the King
And it makes my heart .... want to sing
Christie
"All day long I'll praise and honor You, oh God, for all that You have done for me"
Psalm 71:8
I've been reminded that no matter how long, hard or frustrating my trial may be, my focus should remain on God...His love, kindness, grace, sovereignty and suffiency. Too often, I get bogged down by circumstances and lose my focus. And then, I'm reminded; if He did nothing more than forgive my sins and give me eternal life with Him...which is so much more than I deserve....that should be enough! Yet, He has done abundantly more!!!
You all know how much music ministers to me and the last few days this song has been on my heart and in my head:
You can hear/ watch it at the following link:
http://www.youtube.com/watch?v=-GPpx9oINsI
(to see in a full screen after you click on link, hit the rectangular shape between the speaker and the up arrow under the picture)
How Can I Keep From Singing
Chris Tomlin
There is an endless song
Echoes in my soul
I hear the music ring
And though the storms may come
I am holding on
To the Rock I cling
How can I keep from singing Your praise
How can I ever say enough
How amazing is Your love
How can I keep from shouting Your name
I know I am loved by the King
And it makes my heart want to sing
I will lift my eyes
In the darkest night
For I know my Savior lives
And I will walk with You
Knowing You'll see me through
And sing the songs You give
How can I keep from singing Your praise
How can I ever say enough
How amazing is Your love
How can I keep from shouting Your name
I know I am loved by the King
And it makes my heart want to sing
I can sing in the troubled times
Sing when I win
I can sing when I lose my step
And fall down again
I can sing 'cause You pick me up
Sing 'cause You're there
I can sing 'cause You hear me, Lord
When I call to You in prayer
I can sing with my last breath
Sing for I know
That I'll sing with the angels
And the saints around the throne
How can I keep from singing Your praise
How can I ever say enough
How amazing is Your love
How can I keep from shouting Your name
I know I am loved by the King
And it makes my heart ....
I am loved by the King
And it makes my heart ....
I am loved by the King
And it makes my heart .... want to sing
Christie
Wednesday, January 14, 2009
Battle stations!
We are back in the battle to keep Ron out of the hospital. After several days of consultations between doctors and much concern; we have come up with a game plan that we are all comfortable with.
Ron is back on a strict full liquid diet; along with an aggressive "cleansing" regimen. We will continue to treat from home until Monday; if things are not markedly better by then, he will be admitted to Presbyterian. His doctors are at a point they just don't know what to do with/for him and he cannot continue in this backward trend. His body doesn't do the things that would be expected in regards to recovery and/or effects of medications.
Please pray fervently for these issues to be resolved; preferably without hospital intervention.
Miscommunication: Our truck was NOT totaled; the remark I made about a new vehicle to me, was in reference to the loaner vehicle I will drive while ours is being repaired.
And, many thanks to all of you who have been so encouraging; and a special thank you to our great-nephew Hudson, who lives in Greece with his dad, Jeremy; mom, Julie and twin brother Jonah. He is practicing both his hand writing and encouraging others and chose to send us this very appropriate scripture verse he had written:
"All day long I'll praise and honor You, oh God, for all that You have done for me." Psalm 71:8
Thank you, Hudson, for blessing us in this way! We love you and all of your family.
Christie
Ron is back on a strict full liquid diet; along with an aggressive "cleansing" regimen. We will continue to treat from home until Monday; if things are not markedly better by then, he will be admitted to Presbyterian. His doctors are at a point they just don't know what to do with/for him and he cannot continue in this backward trend. His body doesn't do the things that would be expected in regards to recovery and/or effects of medications.
Please pray fervently for these issues to be resolved; preferably without hospital intervention.
Miscommunication: Our truck was NOT totaled; the remark I made about a new vehicle to me, was in reference to the loaner vehicle I will drive while ours is being repaired.
And, many thanks to all of you who have been so encouraging; and a special thank you to our great-nephew Hudson, who lives in Greece with his dad, Jeremy; mom, Julie and twin brother Jonah. He is practicing both his hand writing and encouraging others and chose to send us this very appropriate scripture verse he had written:
"All day long I'll praise and honor You, oh God, for all that You have done for me." Psalm 71:8
Thank you, Hudson, for blessing us in this way! We love you and all of your family.
Christie
Tuesday, January 13, 2009
When it rains.....
It pours!!
My sweet husband is having a VERY DIFFICULT time dealing with all that's going on physically--especially the chronic reflux and indigestion (as well as the constant fatigue). We thought things had gotten better, and they had for about a day and a half; but now…. He says he spends all day belching and wondering if he's going to throw up which makes him anxious about eating; but knows he has to eat, which exacerbates the symptoms....thus, a never ending cycle. And now it is turning into an emotional battle as well.
We had a very long talk tonight and he confessed that he struggles with worrying; obviously about his health and the seemingly backward step he’s taken and particularly about the future. He doesn’t see a goal in sight career-wise. We know he will never be able to return to the physical demands of the business we own and this is quite overwhelming to him. Many have asked if we have ever considered selling the business; and the answer is YES! We would love to sell! But with the economy in the state it is in, no one is interested.
Right now, Ron is very frustrated and it seems pointless to him to be spending what little “good” time he has on doing paperwork and making phone calls on something that is barely paying its own bills; but in reality at this time we have no choice. It may not bring in any money for us, but each month it’s making payments on the small business loan we have on it.
Please pray: for both Ron’s physical and emotional state; and for God’s direction and peace regarding the future. I’ve told him repeatedly right now, his job is to recuperate and get well! And reminded him our motto is…”enough for today”. God promises to give us whatever it is we need for each day as it arrives.
“Give your entire attention to what God is doing right now, and don’t get worked up about what may or may not happen tomorrow. God will help you deal with whatever hard things come up when the time comes.” Matthew 6:34 The Message
On another note:
Woo hoo! I’m getting a new vehicle as of Friday …well, new to me; courtesy of Progressive Insurance. You guessed it, an accident. No, it was not our fault and fortunately, no one was IN the truck, therefore, no one was injured!
I’d been at work for about ½ an hour this morning when my principal called out to ask if anyone in our office drives a white Toyota Tundra…I responded, “yes that’s me” (naturally my brain immediately starts flying to: did I leave the lights on? Door open? I couldn’t have left it running because I had to use the keys to get into the building, right?) He then asked me to meet someone out in the parking lot; my response “uh-oh” and his was “yeah, uh oh.”
Someone was backing out of the parking lot, cut the wheel too quickly and rammed the driver’s side bed panel, (pretty large spot, including the gas cap area). Poor guy was dropping off his grandkids and….BAM! He felt really bad and was so sweet.
When I got back into the office, I was thinking holy cow…when it rains, it pours.
We could have gotten really upset…one more “bad” thing happening; but in the scheme of things…it’s trivial! We learned a long time ago that a vehicle is just a hunk of metal that gets us from place to place. Yes, this is an inconvenience but more importantly, no one was hurt and the guy tracked me down to get it taken care of.
Later, as I was listening to Todd Agnew, this song reminded me no matter what happens in life, I can be thankful that God’s grace rains down on me.
Grace like Rain
http://www.youtube.com/watch?v=ubyVHdvVMnc
“He causes His sun to rise on the evil and the good, and sends rain on the righteous and the unrighteous.” Matthew 5:45
“For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God…” Ephesians 2:8
Thanks for “listening”!
Christie
Saturday, January 10, 2009
Here's the poop....err, I mean scoop!
It's been a rough week....poor girls I work with have had to deal with a very weepy co-worker! I strive to be upbeat and try to keep things fun and light-hearted at home, but they get to see my raw emotions that I try to keep in check in front of Ron.
Not only was my heart hurting for Ron's latest little episode; but we had met with another family last weekend whose husband/father was in Ron's old ICU room at Harris HEB. We had heard about him from several nurses, as well as my Mom who volunteers in the ICU waiting area. F also had pancreatitis that had manifested in many different ways. Being there, meeting with them, threw me back into the early traumatic days of Ron's illness. I truly believe this is something God has called us to---ministering to other families who are dealing with traumatic illnesses---but it's always so hard; it has a way of stirring up all those memories. We want to offer hope; to testify to God's miraculous healing but at the same time we want to be sensitive and don't want to offer false hope...obviously, we don't know God's plan or what the outcome will be for someone else. This family is a family of firm faith; in the midst of their struggles, they are choosing to trust God's sovereignty.
Wednesday evening, we read F had gone home to be with his heavenly Father. I had been keeping up with the family through their website and no one had expected this. I was overcome with grief for this family; and it hit me really, really hard! I thought how easily that could have been us! And it was an especially fresh reminder since when we last saw Dr. Shires in December he confided that there had been times he wasn't sure Ron would pull through; which rocked my world since I had NEVER heard him express anything like this during all our time at Presby. But of course, he wouldn't...he knew we needed confidence and hope.
Back to Ron, things continued to go downhill throughout the week and by Thursday afternoon, we found we were fighting to avoid another hospitalization.
Before I continue, I must say; I do ask Ron if he is ok with all that I share. We believe in total transparency and when you've dealt with hospitalizations and medical issues as long as we have, there remains no sense of modesty; so some of the things I share may be a little more information than you'd like, but.... these are the things we are dealing with!
The typical person who has gone through bowel resection, along with losing a significant amount of bowel, tends to battle chronic diarrhea; but not my alien husband! His continued reflux/regurgitation, heartburn, bloating and nausea often stems from things failing to "flow" naturally. Ron is on a daily regimen of Miralax in order to help with this process and beginning Tuesday he was being given 2 and then 3 doses throughout the day to encourage natural flow...with no success. By Thursday, it was evident we were on the verge of another obstruction (seeing as how when he would eat, it would immediately come back up....half-way through the meal!--now that will certainly curb an appetite!) At this time he was put back on a liquid diet. If we could not get this taken care of soon; he would need total bowel rest which would involve IV fluids and possibly TPN. Throughout the day, Friday, he was given a total of 4 doses of Milk of Magnesia; with no success. Next step, (ugh!) was an enema! Finally, the end was in sight (haha! I hear the groans from the peanut gallery, but I just couldn't help the pun!) Success!
He slept well last night (first night in about 10 days that he slept well--and of course if he's not sleeping, I'm not!). The reflux/regurgitation, heartburn, nausea, etc. are pretty much gone, but he will continue on an aggressive cleansing regimen for a few days. Obviously, we'll be sticking close to home for a while. And tomorrow, he will also start on an antibiotic that does not go into the bloodstream but specifically stays within the GI tract. Docs are thinking he may have a colonization of bacteria in the small loop of bowel (created by his bowel resection) that is causing some of his problems.
All of this has left him pretty "wiped- out" (sorry, there I go again....laughter is the best medicine tho, right?) Please pray for regained appetite (down another 5 lbs), as well as renewed strength; this week has taken quite a toll on him. He usually tends to take it all in stride; but it's been rather hard on him since he's been feeling so puny.
Also, please pray for my dad...he was finally cleared of all infection and was able to have his hip replacement surgery Wednesday. Things went well, other than a significant amount of blood loss, and he should go home tomorrow. And for F's family (funeral today).
Rest in knowing; today has been a much better day all around. We've really taken it easy; just relaxing here at home. I've taken the opportunity to get caught up on laundry and other household stuff, as well as be a little lazy; don't want to make any noises to disturb Ron's much-needed rest!! And, it's amazing what a good night's sleep will do for you emotionally!
Much love,
Christie
"Be cheerful no matter what; pray all the time; thank God no matter what happens."
I Thessalonians 5:16-18 The Message
Not only was my heart hurting for Ron's latest little episode; but we had met with another family last weekend whose husband/father was in Ron's old ICU room at Harris HEB. We had heard about him from several nurses, as well as my Mom who volunteers in the ICU waiting area. F also had pancreatitis that had manifested in many different ways. Being there, meeting with them, threw me back into the early traumatic days of Ron's illness. I truly believe this is something God has called us to---ministering to other families who are dealing with traumatic illnesses---but it's always so hard; it has a way of stirring up all those memories. We want to offer hope; to testify to God's miraculous healing but at the same time we want to be sensitive and don't want to offer false hope...obviously, we don't know God's plan or what the outcome will be for someone else. This family is a family of firm faith; in the midst of their struggles, they are choosing to trust God's sovereignty.
Wednesday evening, we read F had gone home to be with his heavenly Father. I had been keeping up with the family through their website and no one had expected this. I was overcome with grief for this family; and it hit me really, really hard! I thought how easily that could have been us! And it was an especially fresh reminder since when we last saw Dr. Shires in December he confided that there had been times he wasn't sure Ron would pull through; which rocked my world since I had NEVER heard him express anything like this during all our time at Presby. But of course, he wouldn't...he knew we needed confidence and hope.
Back to Ron, things continued to go downhill throughout the week and by Thursday afternoon, we found we were fighting to avoid another hospitalization.
Before I continue, I must say; I do ask Ron if he is ok with all that I share. We believe in total transparency and when you've dealt with hospitalizations and medical issues as long as we have, there remains no sense of modesty; so some of the things I share may be a little more information than you'd like, but.... these are the things we are dealing with!
The typical person who has gone through bowel resection, along with losing a significant amount of bowel, tends to battle chronic diarrhea; but not my alien husband! His continued reflux/regurgitation, heartburn, bloating and nausea often stems from things failing to "flow" naturally. Ron is on a daily regimen of Miralax in order to help with this process and beginning Tuesday he was being given 2 and then 3 doses throughout the day to encourage natural flow...with no success. By Thursday, it was evident we were on the verge of another obstruction (seeing as how when he would eat, it would immediately come back up....half-way through the meal!--now that will certainly curb an appetite!) At this time he was put back on a liquid diet. If we could not get this taken care of soon; he would need total bowel rest which would involve IV fluids and possibly TPN. Throughout the day, Friday, he was given a total of 4 doses of Milk of Magnesia; with no success. Next step, (ugh!) was an enema! Finally, the end was in sight (haha! I hear the groans from the peanut gallery, but I just couldn't help the pun!) Success!
He slept well last night (first night in about 10 days that he slept well--and of course if he's not sleeping, I'm not!). The reflux/regurgitation, heartburn, nausea, etc. are pretty much gone, but he will continue on an aggressive cleansing regimen for a few days. Obviously, we'll be sticking close to home for a while. And tomorrow, he will also start on an antibiotic that does not go into the bloodstream but specifically stays within the GI tract. Docs are thinking he may have a colonization of bacteria in the small loop of bowel (created by his bowel resection) that is causing some of his problems.
All of this has left him pretty "wiped- out" (sorry, there I go again....laughter is the best medicine tho, right?) Please pray for regained appetite (down another 5 lbs), as well as renewed strength; this week has taken quite a toll on him. He usually tends to take it all in stride; but it's been rather hard on him since he's been feeling so puny.
Also, please pray for my dad...he was finally cleared of all infection and was able to have his hip replacement surgery Wednesday. Things went well, other than a significant amount of blood loss, and he should go home tomorrow. And for F's family (funeral today).
Rest in knowing; today has been a much better day all around. We've really taken it easy; just relaxing here at home. I've taken the opportunity to get caught up on laundry and other household stuff, as well as be a little lazy; don't want to make any noises to disturb Ron's much-needed rest!! And, it's amazing what a good night's sleep will do for you emotionally!
Much love,
Christie
"Be cheerful no matter what; pray all the time; thank God no matter what happens."
I Thessalonians 5:16-18 The Message
Monday, January 5, 2009
Christie, Do you love Me?
Today, as I was struggling with our current circumstances, grieving over this seemingly unending trial; I was feeling rather emotional and a bit unsettled. I wanted to spend time reading my Bible and in prayer, but I just couldn't get over my personal pity party. Instead I wanted to cry and scream (as I did when I was a little girl) "stop this roller coaster, I want off!"
And then, God's still small voice came to me, saying in a very familiar way:
"Christie, do you truly love Me more than these?" I could hear myself responding "Yes, Lord, You know that I love You!" (True words, but the attitude of my heart was more like a prideful, self-righteous: Haven't I proved my love for You by trying to be faithful to give you glory in all things, no matter the circumstance? You know, not everyone would have been as faithful, or transparent, or....)
And again, He asked:
"Christie, do you love me?" and the appropriate response was: "Yes, Lord, you know that I love You." (translated, in a semi-agitated way: Of course, Lord, can't you see I'm doing everything I can to walk in a manner worthy of Your call?)
"Christie, do you love me?" this time my response was: "Lord, you know all things; You know that I love You." (and with a very humble and quiet spirit: You know I DO love You and I can't do this without You)
These words were first spoken to Peter, as recorded in John 21:15-17. Jesus asked Peter three times if He loved Him and Peter had the responses above (excluding those in parentheses; although that might have been the attitude of his heart, who knows?)
Often when I've read this passage I've sensed (and my heart has resonated with) Peter's injured pride; was his love being doubted? Of course he loved Jesus! These words almost seem like words of rebuke...but, when you love someone, you trust them. You want to please them; You seek to place their wants, needs and desires before your own.
It's one thing to say I love Jesus; but am I willing to trust Him and serve Him wherever and in whatever way He calls; to place Him above myself?
What is your heart's response???
"And now, may the God of peace...equip you with all you need for doing His will. May He produce in you, through the power of Jesus Christ, all that is pleasing to Him."
Hebrews 13:20-21 New Living Translation
"Care for the flock of God entrusted to you. Watch over it willingly, not grudgingly--not for what you will get out of it, but because you are eager to serve God...lead them by your good example." I Peter 5:2-3 NLT
"Give all your worries and cares to God, for He cares about what happens to you."
I Peter 5:7 NLT
"For everything comes from Him; everything exists by His power and is intended for His glory. To Him be glory evermore. Amen." Romans: 11:36 NLT
"For God is working in you, giving you the desire to obey Him and the power to do what pleases Him" Philippians 2:13 NLT
And then, God's still small voice came to me, saying in a very familiar way:
"Christie, do you truly love Me more than these?" I could hear myself responding "Yes, Lord, You know that I love You!" (True words, but the attitude of my heart was more like a prideful, self-righteous: Haven't I proved my love for You by trying to be faithful to give you glory in all things, no matter the circumstance? You know, not everyone would have been as faithful, or transparent, or....)
And again, He asked:
"Christie, do you love me?" and the appropriate response was: "Yes, Lord, you know that I love You." (translated, in a semi-agitated way: Of course, Lord, can't you see I'm doing everything I can to walk in a manner worthy of Your call?)
"Christie, do you love me?" this time my response was: "Lord, you know all things; You know that I love You." (and with a very humble and quiet spirit: You know I DO love You and I can't do this without You)
These words were first spoken to Peter, as recorded in John 21:15-17. Jesus asked Peter three times if He loved Him and Peter had the responses above (excluding those in parentheses; although that might have been the attitude of his heart, who knows?)
Often when I've read this passage I've sensed (and my heart has resonated with) Peter's injured pride; was his love being doubted? Of course he loved Jesus! These words almost seem like words of rebuke...but, when you love someone, you trust them. You want to please them; You seek to place their wants, needs and desires before your own.
It's one thing to say I love Jesus; but am I willing to trust Him and serve Him wherever and in whatever way He calls; to place Him above myself?
What is your heart's response???
"And now, may the God of peace...equip you with all you need for doing His will. May He produce in you, through the power of Jesus Christ, all that is pleasing to Him."
Hebrews 13:20-21 New Living Translation
"Care for the flock of God entrusted to you. Watch over it willingly, not grudgingly--not for what you will get out of it, but because you are eager to serve God...lead them by your good example." I Peter 5:2-3 NLT
"Give all your worries and cares to God, for He cares about what happens to you."
I Peter 5:7 NLT
"For everything comes from Him; everything exists by His power and is intended for His glory. To Him be glory evermore. Amen." Romans: 11:36 NLT
"For God is working in you, giving you the desire to obey Him and the power to do what pleases Him" Philippians 2:13 NLT
Sunday, January 4, 2009
Trying to "count it all joy"
Today, Sunday, has been a rough day with floodworks in full force! For some reason, I've been having a very difficult time dealing with what seems to be these backward steps we're experiencing; my heart breaks for my sweet husband who typically has so much joy in life! But, it's not about me.....
Ron continues to experience a great deal of reflux, bloating and is now vomitting daily and sometimes twice daily. And I can tell by looking at him he just isn't feeling well (and does admit to a good deal fatigue and muscle weakness).
Saturday night was especially bad--SEVERE reflux caused inability to get comfortable to be able to sleep; got up vomitting at 4AM and the tightness in his belly was so intense he ended up taking a hydrocodone (which he RARELY does, in fact, it's been at least a month since he has taken any pain meds...I know, I'm a fanatic about keeping notes on everything, I need/want to get a life!). The exhaustion on top of the pain med caused him to sleep til 2PM Sunday.
The last couple of days he seems to be having difficulty every time he eats with severe reflux, bloating and increased tightness....which once again led to vomitting 8:30 PM Sunday.
After vomitting, he still has the tightness in his belly, although tightness is not quite as severe as before vomitting (tightness remains mostly in lower left quadrant, below the scar) but bloating gets better.
He always has tightness in belly; but not this intense. Maybe increase is partly because he has done no physical therapy in the last couple of weeks?? He's been pretty lethargic and other than horseshoes a couple times week of Christmas and a game of Wii tennis Saturday, he's had no measurable physical activity.....oh yeah, Christmas Day when he took a couple swings with a golf club for the first time since October 2007.
Please pray....for Ron especially; but I'd appreciate it if you'd throw in one or two for me as well!
Love,
Christie
Ron continues to experience a great deal of reflux, bloating and is now vomitting daily and sometimes twice daily. And I can tell by looking at him he just isn't feeling well (and does admit to a good deal fatigue and muscle weakness).
Saturday night was especially bad--SEVERE reflux caused inability to get comfortable to be able to sleep; got up vomitting at 4AM and the tightness in his belly was so intense he ended up taking a hydrocodone (which he RARELY does, in fact, it's been at least a month since he has taken any pain meds...I know, I'm a fanatic about keeping notes on everything, I need/want to get a life!). The exhaustion on top of the pain med caused him to sleep til 2PM Sunday.
The last couple of days he seems to be having difficulty every time he eats with severe reflux, bloating and increased tightness....which once again led to vomitting 8:30 PM Sunday.
After vomitting, he still has the tightness in his belly, although tightness is not quite as severe as before vomitting (tightness remains mostly in lower left quadrant, below the scar) but bloating gets better.
He always has tightness in belly; but not this intense. Maybe increase is partly because he has done no physical therapy in the last couple of weeks?? He's been pretty lethargic and other than horseshoes a couple times week of Christmas and a game of Wii tennis Saturday, he's had no measurable physical activity.....oh yeah, Christmas Day when he took a couple swings with a golf club for the first time since October 2007.
Please pray....for Ron especially; but I'd appreciate it if you'd throw in one or two for me as well!
Love,
Christie
Thursday, January 1, 2009
Happy New Year....reflections
“You do not realize now what I am doing but later you will understand.” John 13:7
Late each spring, our church is usually gearing up to staff departments for the following year of Sunday Morning Bible Study (which begins in September). We are asked to pray about our current position and to commit to whether or not we are planning to return to that position. In the spring of 2007, Ron and I both filled out our cards committing to continue our work with high school seniors. We had been working in the student ministry for almost 10 years with the last 5 of that being with senior high school students. We feel God called us to minister to this age in particular, to help prepare these students for life after high school; whatever that may look like and loved this ministry and those students God placed in our lives.
Throughout that summer, I kept feeling maybe I wasn’t supposed to be working with seniors this year. Although I didn’t really have a definitive place I felt God calling me to, just a sense that He wanted me to be available; willing to trust Him. I voiced this to Ron a couple of times but he assured me he felt God placed us in this ministry together as a couple. I still wasn’t sure what God wanted me to do, but felt He had something else in mind.
The first few weeks of school for any school employee are always difficult, tiring; but the beginning of the 2007 school year was especially rough for me. I spent each weekend of the first 6 weeks of school in bed, exhausted; unable to participate in the new Bible Study year. Little did I know God was preparing me both physically, emotionally and spiritually for the next 14+ months of hospital stays and “dying spells”!
As many of you know for many years I suffered from chronic Epstein-Barr virus, a difficult disease to live with both physically and emotionally. EBV is the same virus that causes mononucleosis and is attributed to Chronic Fatigue Syndrome. It causes debilitating fatigue and muscle weakness, as well as a host of other symptoms. I was diagnosed with EBV in the fall of 2003 at which time I was so exhausted I had to take an extended leave from work and was only able to work part-time for the next year and a half. When I was finally able to return to work full time, I had to spend my weekends in bed sleeping, recuperating; physically preparing my body for the next week of work. Over the last several years, I have progressed a great deal, but still must carefully monitor my expended energy, balancing with a lot of rest.
As I learned to live with EBV, there were extended periods of time that all I could do was sleep, eat and rest. As I was often confined to bed, I spent a great deal of time in God’s word. His comfort, strength, and peace washing over me became my lifeline; oh, how I clung to His promises!
It’s amazing that throughout Ron’s many hospital stays, I have remained healthy. Yes, I’ve had a few times where I needed to spend the day in bed sleeping, resting; and there have been days that my muscles have been exceptionally weak, tired, achy and I just don't see how we can take any more. But God is sufficient and always provides times of rest, strength and the perseverance to deal with whatever comes up each day. His provision of my hotel room at Presbyterian is nothing short of a miracle! I cannot imagine how I would have managed if I had had to make the trek from home to hospital each day.
I now see God allowed me to experience this difficult time to allow me to empathize with Ron; to really understand the extreme fatigue/exhaustion, muscle weakness and other similar issues. And He used those years of solitude and immersion in His word to prepare me to handle the turmoil and trials of this last year with confidence, faith and hope that comes from knowing Him intimately and having experienced He is faithful to His promises and worthy of our trust.
God promises His grace is sufficient; and we can certainly attest to this truth!
Happy New Year!
"(We) pray for you constantly, asking God, the glorious Father of our Lord Jesus Christ, to give you spiritual wisdom and understanding, so that you might grow in your knowledge of God. (We) pray that your hearts will be flooded with light so that you can understand the wonderful future He has promised to those He called. (We) want you to realize what a rich and glorious inheritance He has given to His people. We pray that you will begin to understand the incredible greatness of His power for us who believe Him" Ephesians 1:16b-19 New Living Translation
Late each spring, our church is usually gearing up to staff departments for the following year of Sunday Morning Bible Study (which begins in September). We are asked to pray about our current position and to commit to whether or not we are planning to return to that position. In the spring of 2007, Ron and I both filled out our cards committing to continue our work with high school seniors. We had been working in the student ministry for almost 10 years with the last 5 of that being with senior high school students. We feel God called us to minister to this age in particular, to help prepare these students for life after high school; whatever that may look like and loved this ministry and those students God placed in our lives.
Throughout that summer, I kept feeling maybe I wasn’t supposed to be working with seniors this year. Although I didn’t really have a definitive place I felt God calling me to, just a sense that He wanted me to be available; willing to trust Him. I voiced this to Ron a couple of times but he assured me he felt God placed us in this ministry together as a couple. I still wasn’t sure what God wanted me to do, but felt He had something else in mind.
The first few weeks of school for any school employee are always difficult, tiring; but the beginning of the 2007 school year was especially rough for me. I spent each weekend of the first 6 weeks of school in bed, exhausted; unable to participate in the new Bible Study year. Little did I know God was preparing me both physically, emotionally and spiritually for the next 14+ months of hospital stays and “dying spells”!
As many of you know for many years I suffered from chronic Epstein-Barr virus, a difficult disease to live with both physically and emotionally. EBV is the same virus that causes mononucleosis and is attributed to Chronic Fatigue Syndrome. It causes debilitating fatigue and muscle weakness, as well as a host of other symptoms. I was diagnosed with EBV in the fall of 2003 at which time I was so exhausted I had to take an extended leave from work and was only able to work part-time for the next year and a half. When I was finally able to return to work full time, I had to spend my weekends in bed sleeping, recuperating; physically preparing my body for the next week of work. Over the last several years, I have progressed a great deal, but still must carefully monitor my expended energy, balancing with a lot of rest.
As I learned to live with EBV, there were extended periods of time that all I could do was sleep, eat and rest. As I was often confined to bed, I spent a great deal of time in God’s word. His comfort, strength, and peace washing over me became my lifeline; oh, how I clung to His promises!
It’s amazing that throughout Ron’s many hospital stays, I have remained healthy. Yes, I’ve had a few times where I needed to spend the day in bed sleeping, resting; and there have been days that my muscles have been exceptionally weak, tired, achy and I just don't see how we can take any more. But God is sufficient and always provides times of rest, strength and the perseverance to deal with whatever comes up each day. His provision of my hotel room at Presbyterian is nothing short of a miracle! I cannot imagine how I would have managed if I had had to make the trek from home to hospital each day.
I now see God allowed me to experience this difficult time to allow me to empathize with Ron; to really understand the extreme fatigue/exhaustion, muscle weakness and other similar issues. And He used those years of solitude and immersion in His word to prepare me to handle the turmoil and trials of this last year with confidence, faith and hope that comes from knowing Him intimately and having experienced He is faithful to His promises and worthy of our trust.
God promises His grace is sufficient; and we can certainly attest to this truth!
Happy New Year!
"(We) pray for you constantly, asking God, the glorious Father of our Lord Jesus Christ, to give you spiritual wisdom and understanding, so that you might grow in your knowledge of God. (We) pray that your hearts will be flooded with light so that you can understand the wonderful future He has promised to those He called. (We) want you to realize what a rich and glorious inheritance He has given to His people. We pray that you will begin to understand the incredible greatness of His power for us who believe Him" Ephesians 1:16b-19 New Living Translation
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