Sunday, December 2, 2012

It's here!!! Ron tells his story

Love it when my hubby shares!. Though a very condensed version, Ron eloquently shared with our youth group a few weeks ago. Below are his thoughts from that evening.

http://youtu.be/84-WEQDgTeA

Hi family and friends,

The video of my story (covering the last few years) shared with our youth group is now available through the above youtube link. What a rewarding time it was for me, but so much more, I pray it will be something that God can use and others will see their need for Him; or that those who already know Him will find comfort in the same way that I have through faith and trust in Him.

Wanted to give a little background to how this talk came together. For a LONG time now, I have struggled with the fact that I have plateaued in the progress of my healing. Though, I may look good physically, (or so my wife says); I continue to struggle with many health issues. This has caused me great anguish thinking that I should be getting better, not just staying the same.

Two things happened recently that have changed my perspective. One, I finally realized that God has me where I am for His purpose; for whatever reason, this is where He wants me to be. Two, a sermon a few months ago from Dr. Reccord, who had been one of our iterim pastors over the last year. Part of his message was; the worst word in our language is "almost". I almost did this, or I almost followed through on that. This spoke volumes to me at the time and brought me to a point of saying to God; "use me as I am; I'm tired of trying to figure this out on my own."

Not a week later, Aaron and I went to a men's breakfast at our church and Steve, our youth minister and the one in the video with me, sat with us. He asked how I would feel about speaking to our youth on a Wednsday night sometime soon. I could have easily said "no, now's not a good time" seeing that I'd been going through a rough patch, but the word "almost" rang out loud and clear. Sometimes we need a good slap to get things going.

How glad I am that I said "yes" and pray that God will continue to use me "where I am".

Love you all,

Ron

PS: Feel free to share this with anyone you choose.

Sunday, November 4, 2012

Five Years

Nov 4, 2007...5 years ago today... my boys were frantically trying to get home from college and/or out of state work, to see their very ill Dad; only to be greeted with a very grim prognosis -- despite the doctor's best efforts. Caring medical staff were doing everything within their power to keep him alive until their arrival.

 Praise God for His mercy and grace! He blessed us immeasurably; not only allowing them to arrive in time to be with their Dad, but sustaining his life!

 Though the journey has been long and at times most difficult; God is faithful!

 So much more I could say; yet, I don't want to steal Ron's thunder! He is sharing his testimony with our youth this Wednesday, November 7. Please pray for him as this date approaches. He's coming off of a rough few weeks. Pray for his health, strength/stamina, confidence, clarity of thought and communication.

 I'm hoping he will put his thoughts to words and after Wednesday, I will be able to send out an email from him!

 In the meantime, know how much we love and appreciate each of you! Can't imagine these last 5 years without your love & support!

 "I will lead them by ways they have not known, along unfamiliar paths I will guide them;
I will turn the darkness into light before them and make the rough places smooth.
These are the things I will do; I will not forsake them."
Isaiah 42:16 NIV

Wednesday, May 16, 2012

Better Day

Ron's fever finally broke around 11PM and he had a restful night. No fever today and only one little episode this morning. Other than feeling, as he said, "whooped", it has definitely been a better day!

Thank you, for standing in the gap on our behalf. God is faithful! He relieves our anxiety; calms our fears and gives us the grace and strength to not only "survive" but find hope in each day!

"Have I not commanded you? Be strong and courageous. Do not be frightened, and do not be dismayed, for the Lord your God is with you wherever you go.” Joshua 1:9

Tuesday, May 15, 2012

Bless his heart...Ron's episodes continued to get progressively worse throughout the day! Last night he had fever. Today's first episode added uncontrollable trembling to the fever; chills set in late afternoon and tonight's episode had all of these with fever spiking at 103.5! Love the way hubby does things in stages, adding another symptom each time. These episodes tend to increase in severity and length with the first one lasting 25 mins and most recent one lasting 45 minutes. The trembling causes his muscles to cramp and draw up. Once they end, he is TOTALLY wiped out! 

Infectious disease doctor said treatment remains the same; IV antibiotic for 10 days. He also wants us to call him with an update first thing in the morning.

He received his first dose of the new antibiotic this afternoon. Hopefully, by tomorrow afternoon, he'll feel like a new man!

Again???

Ron's had a crummy couple of days. Fever, aches...overall blah! Today, as an added bonus, the uncontrollable shaking episodes came on, similar (minus the pain) to what he had back in March when his PICC was infected! Poor guy; these episodes leave him TOTALLY wiped out for the next few hours!

Infectious Disease called yesterday evening with results from Friday's cultures and he has yet another (NEW!) infection. YEEHAW! New infection is E. cloacae (not to be confused with E. coli).

He will begin different IV antibiotic today for 10 days. They will repeat cultures shortly thereafter. Praise God we are able to administer here at home.

Please pray the antibiotic will take affect quickly and he will have no reactions/side effects.

Also pray for a good state of mind for both of us...at times we are so weary of the battle!

Read today in my devotional: It isn't the load that breaks us down, it's the way we carry it.


"Take my yoke upon you, and learn from me, for I am gentle and lowly in heart, and you will find rest for your souls. For my yoke is easy, and my burden is light.”
Matthew 11:29-30


This is what we strive for daily! We know He is faithful, however, we are needing a little help in lifting this yoke upon our shoulders today.

Much love, Christie

Sunday, March 25, 2012

It's amazing what a difference removal of 'dirty' PICC line along with 48 hours on big gun IV antibiotics makes!

Happy to hear from Interventional Radiology doctor that new PICC went in without a hitch. AND he has had no episodes since noon Friday! Praise God!

Now, we wait to see what cultures grow and go from there.

Thank you for your prayers on our behalf.

Friday, March 23, 2012

The fun continues...

Rough 24 hours around here...Ron has had 3 episodes where he has been hit with a sudden onset of symptoms including fever spike, chills, tremors, severe muscle cramps in legs and severe pain in neck, back and down spine. The episode lasts 15-20 minutes and ends as quickly as it has come on. Each episode has been more intense and has lasted longer than the ones previous. It's so crazy, when he's in the midst of one, it is horrendous; other than when he's been in recovery after surgery, I've never seen such intense trembling. However, shortly after it ends, he feels back to "Ron normal" (other than stiffness in his neck, which has been pretty constant since surgery).

Of course, first culprit they look at is PICC line as his symptoms point to line sepsis (infection in bloodstream of the PICC line).

Fortunately, yesterday he had follow-up appointment (from surgery in Jan) with infectious disease doctor. They did cultures on both lines of his PICC as well as the opposite arm to see how things are going now that he's been off the vancomycin for a week. As of this evening, ALL cultures had already begun to grow something, indicating he definitely has an infection. As of tonight they have re-initiated IV vancomyacin and added another IV antibiotic he will take twice daily. He will have his current PICC (only two months old) removed and another placed in a different area tomorrow.

Please pray for a restful night with no episodes. And as we go to Presby tomorrow for PICC replacement; our 3rd "visit" this week! Ugh. And join me in praising God for our fabulous doctors (and their medical staff) we are truly blessed to have. They are so wonderful to always make themselves accessible to us. We appreciate them for this as well as their expertise, coupled with their compassion and kindess.

Thanks so much! We appreciate your faithful prayers on our behalf.